CONTACT: Cathy Graff
STATE/COUNTY: Kansas City
COUNTRY: United States
INFO: Mother of an 8 y/o boy with 36° thoracic structural and 38° lumbar compensatory curves.
CONTACT: Jane Burton-Davies
INFO: Daughter Sarah 15, has 20/9 degree curves now.
CONTACT: Cheryl A. Kobernik
STATE/COUNTY: Frankfort, Michigan
INFO: Mother of 13 year daughter 20 and 13 degree curves -
just diagnosed - pursuing medical AND alternative treatments.
CONTACT: Sarah H
COUNTRY: England, UK
INFO: : I am scoliosis sufferer, diagnosed at age 4 or 5 y o,
now 20 y o, had 2 surgeries.
CONTACT: Becky Holsen
STATE/COUNTY: Kansas City, MO
INFO: I am 34 years old with a moderate right thoracic
curve. I have experimented with a variety of therapies
and continue to seek greater relief. I believe that most
of my improvement so far has been from yoga.
INFO: I am 14 yrs old and I have scoliosis. I have to wear a
brace 22 hrs a day and If you want to talk to someone thats going through the same thing as you or one of your friends I would like to help and really although your family may give you support they really dont know what its like, so please email me I need a friend with the same thing going on with them as me.
CONTACT: Natasha Belzil
INFO: Diagnosed with scoliosis @ 10 yrs. Wore a brace from 11-14 yrs. Surgery @ 14 yrs. Now 21 yrs old. If anyone needs to talk I am more than willing to share my experiences.
INFO: My 15 year old son has a thoracic curve of 57%, the
lumbar curve at least 70%. He is due for surgery in 2 months time. Any help advice gratefully recieved. Thanks.
STATE/COUNTY: Pittsburgh Pa.
INFO: My 7 year old son (almost 8) had growth rods surgery on Nov.6,2001. Would like to find a boy same age (or parents) dealing with the growth rods.
CONTACT: Sarah Durston
COUNTRY: United Kingdom
INFO: I was diagnoised with scoliosis when i was 12 years old, i am now 20 years old. I decided not to have the surgery when i was younger but I am now considering it.
CONTACT: L. Robichaud
STATE/COUNTY: Nova Scotia
INFO: Hi, I'm a 28-yrd old woman in Canada diagnosed at age 12 and grew up with severe scoliosis. Had 3 surgeries, the last to fix broken Harrington Rods. I now have Miami-Moss System of rods. Please email to contact me. Glad to help.
CONTACT: Robin Chee
INFO: I'm a male, 40 years old in Singapore. Diagnosed with
scoliosis since 15. Used Milwaukee brace till 18. Started on Copes when 38 till present (2002). Check my forums at:
COUNTY/STATE: Easton, PA
INFO: Hi I'm a 14 year old girl who had surgery in November of 2000 on my 48 and 54 degree curves. I'm a competitive swimmer and enjoy playing piano and clarinet. If you would like to talk about scoliosis or anything else please email me :)
INFO: My name is Bill & I have severe scoliosis. A month ago I had lumbar fusions. I'm recovering well & have to have a 2nd surgery with the rods put in. Scoliosis is causing is in the upper part of my back is causing me to have shortness of breath.
CONTACT: Debbie Bucuk
INFO: I have a 15 yr old son diagnosed about two years ago with a 13 deg. curve - has been 17/22 for the past year. This past visit he was also diagnosed with a 60% kyphosis curve. Has anyone had any experience with that? I would appreciate any advice/info.
COUNTRY: United Kingdom
INFO: Hi, im 14 and have 2 curves at 41 and 44 degrees. i have just been given a brace, and would like 2 talk 2 other people who have or are wearing them.
CONTACT: Michelle Voss
INFO: My family has been living with scoliosis since my daughter was diagnosed 3 years ago at age 9. She has an upper curvature of 71 degrees and lower of 52 degrees. Surgery is inevitable. I recently started taking a yoga class at the local college to try and learn if this is something
that will help my daughter. Have you had anyone report certain asanas or any articles, etc on yoga helping to treat scoliosis? I have to also do a term paper for this class
and would appreciate any leads on this subject.
CONTACT: Caitlin Hill
INFO: I am a 14 year old girl that has juvenial idiopathic
scoliosis. when I was 12 years old, I had surgery to
correct my spine. I would like to talk to other people that
have had surgery so we can talk about what we really had
to go through.
CONTACT: Anna Paulding
COUNTRY: I am 16 yrs old and have a 55% thoracic
scoliosis which was diagnosed about 2yrs ago.I decided not to have surgery and I am managing my condition
with 2 intensive iyengar yoga classes per week and there
has been no worsening of my curve. I wore a brace for 9 months.
CONTACT: Erin Britton
COUNTY/STATE: Toronto, ON
INFO: Diagnosed with AIS
(adolescent idopathic scoliosis) when I was 12 y/o.
Curvature was 72 degrees. I am now 24 y/o. Have had surgery with Harrington Rods inserted. Degrees went to 45. Problems with H.R., so went back in to remove 1/2 of H.R. in 1994 at 16 y/o. Many spots hurt, esp. Left shoulder blade. Going to back specialist in July to review case.
CONTACT: Christy Eversmann
INFO: I was diagnosed with scoliosis at age 13. I
wore a Milwaukee brace from 13-16. Now at age 21,the curve in my upper back is 45 degrees, and I am scheduled to have surgery in May of 2002 only in the top part of my
back. If anyone has any comments about the surgery to make me feel more at ease, it would be appreciated.